CSF
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DONATE SIGN UP NOW WAYS TO GIVE VOLUNTEER VIDEOS unite@night

CSF's mission: to advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation , syringomyelia and related disorders.

UPCOMING EDUCATIONAL LECTURES

5/10/18 Charleston, South Carolina
Swallowing Issues Associated with Surgical Intubation - Dr. Lucinda Halstead

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CSF International Patient Registry Project. CSF is currently beginning work on a huge, international patient registry that has never been attempted before... and we need your help.

CSF News

4TH INTERNATIONAL CSF HYDRODYNAMICS SYPOSIUM

CSF continues to be a proud sponsor of the international CSF Hydrodynamics Symposium, which is an international meeting consisting of engineers, bioengineers and mathematicians. Researchers come together to discuss the pathology of cerebrospinal fluid flow disruption, and how the fluid dynamics related to CSF flow in patients with Chiari and syringomyelia may cause symptoms.

The 2017 symposium took place on June 19-20, 2017. You can learn more about the symposium and its speakers and watch full-length presentations from the meetings here .


2018 UNITE@NIGHT: UNLOCKING ANSWERS

Help us raise desperately needed awareness and education/research funds that will help families who are struggling with Chiari malformation, syringomyelia and related disorders.

Set up your own walk ! Set up a unite@night walk or host a Solo Walk with just your friends and family. Learn more about how to make a difference on your own.

Thank you to the 2017 national corporate/family sponsors who have already signed on to support these events: The Mikula Family (main sponsor), The Stewart Restaurant Group and Sports Gallery USA . Not a big corporate sponsor, but still want to sponsor a local walk near you? You can become a symptom marker sponsor for only $50! Just fill out this form and send it to unitenight@csfinfo.org !

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EDUCATIONAL LECTURES

Screen_Shot_2017-02-10_at_11.50.12_AM.png We held numerous educational lectures last year with topics ranging from urological considerations of Ehlers-Danlos syndrome and physical therapy in hypermobile patients to the tougher subjects like pain management in Chiari and related disorders. Did you miss or were too far to attend one of these lectures? You can always watch the full presentations on our website. We make every CSF sponsored lecture freely available online for patients, families and medical professionals.

More lectures are always being added to be sure to check the CSF Calendar of events to find a lecture that may be coming near you!


CHIARI@SCHOOL

It can be hard for kids to go through a diagnosis of Chiari or syringomyelia... on top of school, family, friends and all kinds of other stress. Watch our friend, Erin, talk about what happened to her, how she handled school after surgery, and how she made new friends along the way! Visit the Chiari@School page to learn more about how kids with these disorders can get more help in school so they don't fall behind!


COMMON DATA ELEMENTS & INTERNATIONAL PATIENT REGISTRY

cde_logo.png The Common Data Elements (CDEs) for Chiari I malformation are officially available for public use by researchers on the NINDS website. Input from scientists, physicians, engineers, industry partners, advocates, families, and patients was used to determine what CDEs would be most beneficial to research. Thank you for supporting this huge effort and for offering your questions and comments to improve research into Chiari, syringomyelia and related disorders. We're one step closer to unlocking the future! Learn more about this project.


PAST CSF FUNDED RESEARCH

Upcoming 2018 Events

CASINO NIGHT - SPEAKEASY
staten island, new york
march 3, 2018
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The 2018 CSF Casino Night Charity Ball will take place on Saturday, March 3rd at the Hilton Garden Inn in Staten Island, New York. Join us for a night of fine dining, gaming and silent auction.


7TH ANNUAL BOBBY JONES CLASSIC FOR CSF
atlanta, georgia
may 20-21, 2018

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The seventh annual Bobby Jones Classic will include even more new surprises! Learn more  by visiting bobbyjonesclassic.com .

Thank you to our 2017 BJC sponsors: Farrell Law Firm, P.C., Select Sector SPDRs, The Farrell Law Firm P.C., KPMG, Sunice, Alston & Bird LLP, Bobby Jones, Doctors Community Hospital, TruGolf, 47 Brand, Bridgestone Golf, Touchpoint Support Services, Robert P. Brady Agency, Southern Wine & Spirits of America Inc., Fuzzy's Ultra Premium Vodka, and DJJ Technologies.


DINNER DANCE FOR A CURE
TWINSBURG, OHIO
OCTOBER 27, 2018

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Join us for a fabulous evening of dinner, dancing and silent auction.


NIGHT OF LIGHT CHILDREN'S GALA
london, england
November 10, 2018
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This exclusive and unique white-tie event will be held for a limited number of philanthropic guests at Brooks's in London, England. It is our hope that the money raised this year will help fund our international data registry, and support the ongoing research efforts that will ultimately lead to improved understanding and methods of diagnosis and treatment.


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