Scientific Educational & Advisory Board


Ashley-Koch_picture.jpg Allison Ashley-Koch, is a Professor in the Division of Medical Genetics, Department of Medicine at Duke University Medical Center. She received her Ph.D. in genetics and molecular biology from Emory University. Dr. Ashley-Koch is a genetic epidemiologist whose primary goal is the identification of genes that contribute to human genetic disorders, including gene-gene and gene-environment interactions. She has a particular interest in the genetics of Chiari Type I Malformations , with and without Syringomyelia. She and her colleagues at Duke are working to identify genetic risk factors for Chiari using a variety of methods, including whole genome genetic analysis, sequencing of candidate genes, and gene expression studies. She is particularly interested in using radiologic and clinical features to reduce the clinical heterogeneity in these malformations.

Contact Dr. Ashley-Koch .


Batzdorf.jpg Dr. Batzdorf has been associated with UCLA for over 35 years and is Professor and Director of Spinal Neurosurgery and Director of the Spine Center. Specializing in spinal neurosurgery, . Batzdorf's primary focus is in the treatment of syringomyelia, and spinal cord tumors.

He has published numerous articles about surgical techniques for SM/CM and is considered a leader in research regarding spinal syringomyelia.

Contact Dr. Batzdorf .


Benzel.jpg Edward C. Benzel, MD, is Chairman, Department of Neurosurgery and Director, Center for Spine Health, at the Cleveland Clinic.

Dr. Benzel's major clinical interests embrace many aspects of neurosurgery, but are focused on spinal disorders including cervical spondylosis, syringomyelia and Chiari malformation, complex spine instrumentation, and spine tumors. Clinical research has encompassed such issues as hydrocephalus, neonatal hemorrhage, cerebrovascular disorders, cranial trauma, critical care, brain death, microelectromechanical systems (MEMS), and of course, spinal disorders.

He has been actively involved in the Congress of Neurological Surgeons, American Association of Neurological Surgery, North American Spine Society (NASS), and Cervical Spine Research Society. He serves on numerous committees, and in different positions on the Board of Directors of the various societies. Dr. Benzel just recently completed his tenure as Chairman of the World Spine Society (WSS), whose mission is to "improve spine health worldwide."

Dr. Benzel holds several patents and has participated in many medical advances. He is perhaps best known as an educator. He directed the Neurosurgery Residency Training Program, and the Spine Fellowship Programs at the University of New Mexico, and currently directs these programs at the Cleveland Clinic. His innovation in Neurosurgery Resident Education has won accolades and numerous awards.

Contact Dr. Benzel by calling 216-636-5860.


Bolognese.jpg A native of Torino, Italy, Paolo A. Bolognese, M.D., graduated cum laude from the Medical School of the University of Turin. In 1990, he completed his neurosurgical training at the same university under the guidance of Professor Victor A. Fasano, an international leader in the field of high-tech applied to neurosurgery.

During this time, Dr. Bolognese became the leading worldwide expert in the field of laser Doppler flowmetry applied to neurosurgery and the top European figure in the field of neurosurgical intraoperative ultrasound. Upon the death of his former mentor, in 1992 he accepted the invitation of Dr. Thomas H. Milhorat to transfer his laser Doppler research to the United States and to be retrained under Dr. Milhorat at SUNY Health Science Center at Brooklyn.In addition to his U.S. neurosurgical training, Dr. Bolognese became the first trainee of the Fellowship in the Surgical Management of Chiari I Malformation and Related Disorders under Dr. Milhorat.

In 2001, Dr. Bolognese joined Dr. Milhorat at the Departments of Neurosurgery at North Shore University Hospital and Long Island Jewish Medical Center and as Associate Director of the Chiari Institute. Effective September 1, 2014, Dr. Bolognese will serve as director of the Chiari Neurosurgical Center.

Contact Dr. Bolognese .

douglas l. Brockmeyer, MD
university of utah
salt lake city, utah

Doug.jpg Dr. Brockmeyer is currently the Chief of the Division of Pediatric Neurosurgery at the University of Utah. He has a clinical interest in the management of complex Chiari malformations within the pediatric population and a research interest in prospective clinical studies in pediatric neurosurgery.

He is also an investigator in the Park-Reeves Syringomyelia Research Consortium, a multi-institutional North American research effort, founded to improve the medical and surgical care of children with syringomyelia realted to Chiari I malformation.

Contact Dr. Brockmeyer .

Richard G. Ellenbogen, MD
University of Washington
Seattle, Washington

Ellenbogen.jpg Dr. Ellenbogen is a professor and chair of the Department of Neurological Surgery at UW Medicine and attending surgeon at Harborview Medical Center, Seattle Children’s and University of Washington Medical Center. He previously served in the U.S. Army as chief of the Department of Neurosurgery at Walter Reed Army Medical Center, was deployed with the 18th Airborne Corps during Desert Storm and was awarded a Bronze Star for his service to soldiers with traumatic brain injury (TBI).
Dr. Ellenbogen is a principal investigator on an Allen Brain Foundation grant studying the long-term cognitive and health effects of TBI. He is the volunteer co-director of the NFL Head, Neck and Spine Medical Committee. In that capacity, he has advocated for health- and safety-related rules changes, sideline concussion diagnosis and management protocols and youth concussion protection laws in all 50 states.
UW Medicine Drs. Stanley Herring and Richard Ellenbogen helped develop "Heads Up" online concussion training .

Contact Dr. Ellenbogen .

Clair Francomano, MD
Greater Baltimore Medical Center
Baltimore, Maryland

Francomano.jpg Dr. Clair Francomano attended Yale College as an undergraduate and received her M.D. from Johns Hopkins University School of Medicine. She trained in Internal Medicine and Medical Genetics at Johns Hopkins and joined the full-time Hopkins faculty in 1984. In 1994 she became Chief of the Medical Genetics Branch at the National Human Genome Research Institute, National Institutes of Health, where she served as Clinical Director from 1996-2001. From 2001-2005 she was Chief of the Human Genetics and Integrative Medicine Section in the Laboratory of Genetics, National Institute on Aging. She joined the GBMC faculty in 2005 as Director of Adult Genetics at the Harvey Institute of Human Genetics, and joined the GBMA practice in July 2006.

Contact Dr. Francomano by calling 443-849-3131.


Gilmer.jpeg Dr. Gilmer is Chief of Pediatric Neurosurgery and Associate Professor of Neurosurgery at Oakland University Medical School.  She graduated cum laude from Harvard University, and received her medical degree from the University of Michigan.  She then completed residency in neurosurgery at the University of California, Davis Medical Center, followed by fellowships in peripheral nerve surgery at Louisiana State University Medical Center and pediatric neurosurgery at Children’s Hospital of Michigan/Detroit Medical Center.  She is board-certified by the American Board of Neurological Surgery and the American Board of Pediatric Neurological Surgery.

Dr. Gilmer’s research and clinical specialties include Chiari malformations, dysraphism, hydrocephalus, neuro-oncology, peripheral nerve surgery, and craniofacial reconstruction.  She has given over 80 lectures nationally and internationally, and is a regular reviewer for Neurosurgery, Operative Neurosurgery, World Neurosurgery, and the Journal of the National Medical Association .

Dr. Gilmer has just completed her term on the Board of Directors of the American Association of Neurological Surgeons.  She is currently President of the Peripheral Nerve Task Force, and is a member of the Executive Committee of the AANS/CNS Joint Section on Spine and Peripheral Nerve.  She has served on the Executive Committees of the Congress of Neurological Surgeons and the Council of State Neurosurgical Societies, and has been Vice-Chair of the CNS Education Committee.  She is past President of Women in Neurosurgery and the Michigan Association of Neurological Surgeons.


1-28-16_palo_alto.jpg Dr. Gerald Grant graduated magna cum laude with a Bachelor of Arts degree from Duke University in 1989 and then completed his medical education at Stanford University School of Medicine in 1994. Dr. Grant is currently an Associate Professor of Neurosurgery and by courtesy, Neurology at Stanford University Medical Center. He was previously tenured faculty at Duke University in the Preston Robert Tisch Brain Tumor Center and was recruited to Stanford in 2013 to be Division Chief of Pediatric Neurosurgery. Dr. Grant is a member of the Stanford Cancer Institute, Stanford Neurosciences Institute, Bio-X, and Child Health Research Institute at Stanford. He is a Diplomat of the American Board of Neurological Surgery and is also board certified in Pediatric Neurosurgery by the American Board of Pediatric Neurological Surgery.

He has a specialized clinical interest in Chiari malformations, pediatric brain tumors, epilepsy, and trauma. His laboratory efforts focus on molecular characterization of the blood-tumor barrier and tumor microenvironment and was previously funded by the AANS (NREF grant) as well as a Career Development Award from the NCI (Spore-Duke) and currently directs a translational blood-brain barrier laboratory funded by the NIH (NINDS). Dr. Grant also collaborates closely with several biomedical engineers at Stanford to study small molecule drug conjugates. Dr. Grant is the Stanford Principal Investigator for the Park Reeves Chari Syringomyelia Consortium.

Dr. Grant was elected to the Executive Committee of the Congress of Neurological Surgeons, the Joint Section of Pediatric Neurosurgery, and the American Association of Pediatric Neurosurgeons. He is also currently Publications Chair, Editor-In-Chief of Clinical Neurosurgery and Congress Quarterly , and Pediatric Section Editor for Neurosurgery. He is a new member of the CSF Scientific and Educational Advisory Board.

Contact Dr. Grant .


John_Heiss.jpg Dr. Heiss is Head, Clinical Unit, in the Surgical Neurology Branch, NINDS, at the National Institutes of Health in Bethesda, Maryland and Clinical Professor of Neurosurgery, George Washington University, Washington, DC. He is the Principal Investigator of clinical research protocols that examine the pathophysiology of syringomyelia and the genetics of Chiari I malformation. He is Vice-Chair of the NINDS Institutional Review Board and former Chairman of the Surgical Administrative Committee.

An expert in surgery for brain tumors, syringomyelia, and epilepsy, Dr. Heiss has lectured extensively on various topics in neuroscience and neurosurgery, and has published dozens of original research papers, review articles, and abstracts based on his research. He has served on grant review panels for the National Cancer Institute. Dr. Heiss is board certified in neurological surgery by the American Board of Neurological Surgery.

Contact Dr. Heiss .

Fraser Henderson, MD - Executive Committee
Doctors Community Hospital
Lanham, Maryland

Henderson.jpg Dr. Henderson joined Georgetown University, in Washington D.C. as Director of Neurosurgery of the Spine and Cranio-cervical Junction in 1994. He was Co-Director of the Lombardi Neuro-Oncology Division, Co-Director of the CyberKnife Radiosurgery Center, and Medical Director of the Neuroscience ICU and step-down units. He has published over 70 peer reviewed articles and book chapters, and given over 170 invited lectures with a focus on cancer, radiosurgery and the treatment of spine disorders. Dr Henderson is currently in the Top Surgeons (Consumers Research Council of America), Best Doctors in America, Top Doctors (Nichols Institute), and Top Doctors for Northern Virginia, and was awarded the Mayfield Neurosurgical Research Award in 2008. Dr Henderson his wife, Becky, and three sons- Fraser, Lansdale and Landon live on a farm in Prince Georges County.

Contact Dr. Henderson by calling 301-654-9390.

petra m. klinge, MD
brown univerSity
providence, rhode island

SEAB_klingephoto.jpg Dr. Petra M. Klinge received her medical degree at the University in Kiel in 1993.  After completeing her neurosurgical residency in Hanover Medical School, Germany, in 2002, Dr. Klinge held the position of Senior Physician and Assistant Professor of Neurosurgery at the International Neuroscience Institute in Hanover, Germany. Dr. Klinge joined the Neurosurgery Foundation and the Warren-Alpert Medical School at Brown University, Providence, Rhode Island, as an Attending Neurosurgeon in May 2009 and received the degree of Associate Professor of Neurosurgery at the Warren-Alpert Medical School at Brown University in December 2009.

Dr. Klinge is an internationally renowned clinician for diagnosis and neurosurgical treatment of patients with Hydrocephalus and Alzheimer dementia. She continues her research activities in collaboration with the Department of Clinic Neurosciences at Brown University, working on the unifying concept of dementias, in particular Alzheimer-related pathology in Hydrocephalus of aging patients. In addition to complex adult and pediatric hydrocephalus, her practice also includes skull-base surgery and patients with developmental Cerebrospinal fluid disorders such as spina bifida, Chiari malformation, as well as both benign and malignant tumors of the brain. As a trusted advisor and resource on hydrocephalus research, Dr. Klinge also speaks on the behalf of the Hydrocephalus Association (HA) at NIH-sponsored workshops and national and international conferences. Dr. Klinge's scientific interests comprise the development of advanced techniques for diagnosing and treatment of dementia, experimental work to advance the understanding of normal aging, cerebrospinal fluid circulation and dementia, and development of novel biotechnical treatment approaches, including stem cell therapy for the treatment of cerebrospinal fluid disorders and neurodegenerative diseases.

Dr. Klinge was President of the International Society for Hydrocephalus and CSF Disorders from May 2010 to 2012, and is currently an active member of the American Association of Neurological Surgeons and the Congress of Neurological Surgeons.

Contact Dr. Klinge by calling 401-793-9123.


KobyMyles.jpg Dr. Myles Koby is the staff Neuroradiologist at Doctors Community Hospital of Prince Georges County of Maryland.  He has been an Assistant Professor at the University of Maryland School of Medicine and staff Neuroradiologist Department of Diagnostic Radiology, National Institutes of Health Bethesda, Maryland. He completed his neuroradiology fellowship at Mallinckrodt Institute of Radiology, Washington University School of Medicine,       Saint Louis, Missouri and Residency in Diagnostic Radiology at Los Angeles County/University of Southern California Medical Center, Los Angeles, California.  He is a graduate of Wayne State University School of Medicine, and University of Detroit School of Dentistry, both in Detroit, Michigan. He has been a reviewer for JCAT (Journal of Computer Assisted Tomography).

Contact Dr. Koby by calling 301-552-8513.


roger w. kula, md - Executive committee
Lake success, new york

Kula.jpg Roger W. Kula, M.D., has been Medical Director of the Chiari Institute since 2003. He received his neurology training at the University of California Hospitals, San Francisco, where his exposure to the influence of then-chairman Robert A. Fishman, M.D., first stimulated his interest in spinal fluid physiology.

In 1977, he established a neuromuscular disease program at the SUNY Health Science Center at Brooklyn as assistant professor of neurology. He went on to establish one of the most clinically active Muscular Dystrophy Association clinics in the tri-state area and developed a national reputation in the study and treatment of autoimmune neuromuscular diseases, motor neuron diseases and muscular dystrophy. He was honored for his dedication to the clinical care of patients by being named the first recipient of the Muscular Dystrophy Association's Ade T. Milhorat Humanitarian Award in 1998.

After an increasingly close collaboration with Dr. Thomas H. Milhorat through the 1990's, his interests expanded to include the diverse and subtle neurological symptoms plaguing Chiari and syringomyelia patients. He has been a funded investigator with grants supported by the American Syringomyelia Alliance Project, the Muscular Dystrophy Association and numerous pharmaceutical groups such as Amgen, Regeneron, Ahhott Labs and Burroughs-Wellcome.

Contact Dr. Kula .

David Limbrick, MD, PhD
St. Louis Children's Hospital
St. Louis, Missouri

Limbrick.jpg David Limbrick, M.D., Ph.D., is a pediatric neurosurgeon at St. Louis Children's Hospital, Washington University in St. Louis. Dr. Limbrick graduated with a B.S. (Biology) from the College of William and Mary as well as an M.S. (Physiology), Ph.D. (Pharmacology) and M.D. from the Medical College of Virginia. His graduate research training was in cellular neurophysiology in the laboratory of Dr. Robert DeLorenzo and in molecular biology in Joshua Rubin's lab at Washington University.

Dr. Limbrick's clinical interests include epilepsy surgery, hydrocephalus and surgery of the craniovertebral junction. His research has focused on cerebrospinal fluid physiology in the setting of developmental brain injuries and syringomyelia. He is currently an Assistant Professor of Neurological Surgery and Pediatrics.

Contact Dr. Limbrick by calling 314-454-2818.

Mark Luciano, MD - chairman
johns hopkins university
baltimore, maryland

Luciano.jpg Dr. Luciano is board-certified in general neurosurgery and in pediatric neurosurgery. He is Head of Congenital and Pediatric Neurosurgery and Co-Director of the Pediatric Neurology Center at Cleveland Clinic. His patients are children and adults with neurological congenital anomalies, hydrocephalus, cerebral cysts, tumors, craniofacial anomalies, tethered cord, Chiari malformation and cerebral palsy.

Dr. Luciano also directs the Neuroendoscopy and CSF Disorders program. He has an established clinical program, research and educational work in neuroendoscopy, a form of minimally invasive neurosurgery. Dr. Luciano has directed Cleveland-area, national and international courses in neuroendoscopy and has developed new techniques in minimally invasive neurosurgery.

As a result of his recognized leadership in hydrocephalus, Dr. Luciano has been on the National Hydrocephalus Association advisory board and has appeared in the local and national press and television including the Wall Street Journal, Woman's Day, and the Today Show.

In addition to national publications, peer-review and editorial activity, Dr. Luciano is an internationally invited speaker in neuroendoscopy, hydrocephalus and pediatric neurosurgery. He was the "Brahm Prakash Memorial Orator" in New Dehli, India, and has been invited as visiting professor and speaker in India, China, Egypt and Europe. He has initiated an international cooperation between Cleveland Clinic and Peking Union Medical Center in Beijing, China, for education in neuroendoscopy. In addition, he has served as host and thesis mentor for international MD research fellows from Egypt and Sweden.

Contact Dr. Luciano by calling 410-955-7482.

university of michigan health system
ann arbor, michigan

Maher.jpeg Dr. Maher is a graduate of Georgetown University, where he obtained a Doctorate of Medicine and was elected to the Alpha Omega Alpha Medical Honor Society. He completed his surgical internship and neurosurgical residency at the Mayo Clinic in Rochester, Minnesota. Soon thereafter, he moved to Boston, Massachusetts for dedicated training in pediatric neurosurgery under the direction of R. Michael Scott, M.D. of Harvard University and Boston Children's Hospital. During his time in Boston, . Maher served as the Shillito Staff Associate in the Department of Pediatric Neurosurgery at Children's Hospital Boston. After completion of his training at Boston Children's Hospital, . Maher completed fellowship training in cerebrovascular neurosurgery under the direction of Arthur L. Day, M.D of the Brigham and Women's Hospital and Harvard University.

Dr. Maher is an active clinician-investigator and has published over 130 scientific articles as well as book chapters on a wide variety of neurosurgical topics. His work has appeared in many medical journals including the Journal of Neurosurgery, Stroke, Neurosurgery, and Neurology.  He is on the editorial board of the Journal of Neurosurgery Publishing Group.

Dr. Maher is a diplomate of both the American Board of Neurological Surgery as well as the American Board of Pediatric Neurosurgery. He is a member of the American Society for Pediatric Neurosurgery. He is a fellow of the American College of Surgeons, the American Association of Neurological Surgeons, and the American Academy of Pediatrics.  He is a director of the Accreditation Council for Pediatric Neurosurgery Fellowships.

Contact Dr. Maher .

Harold Rekate, MD - Executive Committee
Great Neck, New York

Rekate.jpg Dr. Rekate is director of the Chiari Institute, within the Northwell Health System. Prior to joining Northwell Dr. Rekate served as chairman of pediatric neurosciences and chief of pediatric neurosurgery for more than 25 years at the Barrow Neurological Institute (BNI). While at BNI, Dr. Rekate was a clinical professor of neurosurgery at the University of Arizona College of Medicine.

Dr. Rekate completed his undergraduate studies at Duke University and received his medical degree at the Medical College of Virginia. He trained in neurosurgery and pediatric neurosurgery at the University Hospitals of Cleveland and completed his residency training at Case Western Reserve University. Dr. Rekate is board certified by the American Board of Neurological Surgery and the American Board of Pediatric Neurological Surgery. He is on the faculty of the Hofstra North Shore-LIJ School of Medicine as professor of neurosurgery.

A widely published author of more than 200 publications, most of which are related to cerebrospinal fluid difficulties, including Chiari malformations, syringomyelia and hydrocephalus, Dr. Rekate also served as editor for a number of prestigious medical journals and was chairman of the editorial board of the Journal of Neurosurgery Pediatrics. Over the course of his career, Dr. Rekate has done extensive research regarding spinal fluid flow, receiving funding from the National Institutes of Health and the National Aeronautics and Space Administration. Dr. Rekate has received numerous awards and honors, including the prestigious Pudenz Award of Excellence in Research in Cerebrospinal Fluid Physiology.

Contact Dr. Rekate .

Brandon G. Rocque, MD - executive committee
Children's of Alabama
Birmingham, AL

SEAB-rocquephoto.jpg Brandon G. Rocque was born and raised in Atlanta, Georgia. He attended the University of Georgia, where he was a member of the NCAA top-ten men's swim team and graduated summa cum laude with majors in chemistry and biology. He received his medical degree from Washington University in St. Louis and went on to neurosurgery residency at the University of Wisconsin, Madison. During residency, he also completed a Masters Degree in Clinical Investigation. Dr. Rocque then spent an additional year in Madison for a fellowship in Complex and Reconstructive Spinal Surgery prior to his fellowship in Pediatric Neurosurgery at Children's of Alabama. He currently practices at Children's of Alabama. Dr. Rocque's research focus is developing the field of outcomes research in pediatric neurosurgery.

Contact Dr. Rocque by calling 205-638-9653 .


Rowe-2013-dtl.jpg Pediatrician Peter Rowe directs the Chronic Fatigue Clinic at Johns Hopkins Children’s Center. He is the inaugural recipient of the Sunshine Natural Wellbeing Foundation Chair in Chronic Fatigue and Related Disorders at Johns Hopkins, where he is a professor of pediatrics.
A noted researcher, as well as clinician, in the field of chronic fatigue, Rowe was the first to describe the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and CFS. This research has been funded by the National Institutes of Health, the U.S. Department of Defense, the CFIDS Association of America, and several smaller foundations, as well as by private philanthropy.

Contact Dr. Rowe .

Mark souweidane, md
Weill Cornell Medical College
new york, ny

souweidane_pic.jpg Mark M. Souweidane, MD has dedicated his career to the surgical treatment of children with brain and spinal disorders. His talents as a surgeon are paralleled by a caring attitude and time commitment to patients and their families. That the Weill Cornell Medical College is a recognized leader in Pediatric Neurosurgery is a direct result of his recruitment in 1995 and his ongoing devotion to contemporary surgical techniques and investigative endeavors. Specialized surgical skills have gained him international reputation for specific procedures, including removal of intraventricular brain tumors, management of pineal region tumors, treatment of congenital cysts, and surgery for Chiari malformation. In addition to the development of a world-class Pediatric Neurosurgery service, he has championed minimal access neurosurgery. His publications, clinical case volume, and practical courses continue to draw patients and practitioners that benefit from his endoscopic talents. His commitment to the education of future pediatric neurosurgeons is reflected in his participation on the Committee of Admissions for the medical college, his lectures to medical school students, his role as resident advisor, and resident mentoring at one of the country's premier training programs.

Dr. Souweidane currently serves as the Vice Chairman of the Department of Neurological Surgery and the Director of Pediatric Neurological Surgery at the Weill Cornell Medical College and Memorial Sloan-Kettering Cancer Center. He is an associate professor in Neurological Surgery and Pediatrics.

Contact Dr. Souweidane by calling 212-746-2363.

Marcus Stoodley, MD
New South Wales, Australia

professor_marcus_andrew_stoodley.jpg Dr. Stoodley graduated with honors from medical school at the University of Queensland and went on to train in neurosurgery in Perth and Adelaide. After completing neurosurgery training in Australia, he completed further subspecialty training in vascular neurosurgery at Stanford University and the University of Chicago in the United States. On returning to Australia in 1999 he worked at the University of New South Wales and The Prince of Wales Hospital, where he established an area-wide vascular neurosurgery service and a neurosurgery research laboratory. In 2008 Professor Stoodley joined Macquarie University and moved his clinic and research laboratory to the Australian School of Advanced Medicine in 2010.

Dr. Stoodley has clinical expertise in neurovascular surgery, including aneurysm surgery, surgery for trigeminal neuralgia and hemifacial spasm, and bypass surgery for moyamoya disease and other vascular occlusive disorders. In addition, he has a special interest in Chiari malformation, syringomyelia, and spinal cord tumours.

In 1997, Dr. Stoodley was awarded a PhD for his research on the pathophysiology of syringomyelia. He directs the neurosurgery laboratory at the Australian School of Advanced Medicine and continues research on syringomyelia as well as developing new biological treatments for brain arteriovenous malformations (AVMs). He has more than 100 publications and has supervised over 15 neurosurgery research students.

Contact Dr. Stoodley .



Frim.jpg A pediatric neurosurgeon, Dr. Frim has performed hundreds of complex neurosurgical procedures on infants and children. He also provides neurosurgical care for adults, particularly for individuals who have congenital diseases. Dr. Frim has developed expertise in a variety of minimally invasive, stereotactic, and neuro-endoscopic techniques to approach complex lesions of the brain and spine. He has particular interests and significant experience in surgical procedures to treat hydrocephalus, congenital anomalies of the nervous system such as Chiari malformation, epilepsy, myelodysplasia, brain and spine tumors, and trauma.

In addition to his clinical work, Dr. Frim is an active medical researcher and educator. His current investigations include studies of the neuroprotective effects of surfactant poloxamer molecules, investigations of the cognitive outcomes in hydrocephalus and Chiari patients, and development of treatment strategies for congenital complex anomalies of the nervous system.

Contact Dr. Frim .

Timothy M. George, MD
Dell Children's Medical Center of Central Texas
Austin, Texas

George.jpg Dr. George moved to Austin, Texas in 2006 from Durham, North Carolina where he was the Associate Professor of Neurosurgery, Pediatrics and Neurobiology at Duke University. He is currently Chief of Service of the Pediatric Neurosciences and Neurosurgery at the Dell Children's Medical Center where he oversees the clinical and translational research programs. Dr. George completed his medical training at New York University; his residency in Neurosurgery at Yale University School of Medicine; and his Pediatric Fellowship at Children's Memorial Hospital in Chicago. He is board certified by the American Board of Neurological Surgery and the American Board of Pediatric Neurological Surgery. Dr. George is also a member of the American Society of Pediatric Neurosurgeons, Congress of Neurological Surgeons, American Academy of Pediatrics and other scientific societies and organizations.

Current areas of research include genomics and surgical outcomes of Chiari malformation, cranial nerve stimulation for pediatric epilepsy, genomics of neural tube defects, and molecular and cellular mechanisms and abnormal development of the spinal cord.

Contact Dr. George by calling 512-324-0907.

Barth A. Green, MD
The Miami Project to Cure Paralysis
University of Miami School of Medicine
Miami, Florida

Green.jpg Dr. Green is presently Professor and Chairman, Department of the Neurological Surgery at the University of Miami, Miller School of Medicine. He specializes in the surgical management of complex spine and spinal cord injuries and disorders.

In 1985, his research and clinical activities led to his joining hands with the Buoniconti family co-founding The Miami Project to Cure Paralysis, today the largest and most productive spinal cord injury and paralysis research center in the world.

Dr. Green also co-founded Shake-A-Leg Miami with Harry Horgan which started as an adaptative watersport center and later added a major emphasis on combining education with recreation. Presently, the program annually serves over 12,000 thousand children and adults with physical, developmental, and economic challenges.

Project Medishare for Haiti is another collaborative effort that Dr. Green co-founded with Dr. Arthur Fournier. This organization provides community health services to over 70,000 Haitians living in one of the most underserved regions of the nation among its many educational and medical programs.

Most recently, Dr. Green and Kathy Andersen with the support of Dean Pascal Goldschmidt co-founded the University of Miami Global Institute for Community Health and Development. This is a university-wide program focused on improving healthcare and advancing community development in our hemisphere.

Even after more than 30-years of his academic practice, Dr. Green pursues his work every day with a passion and energy admired by his peers and colleagues.

Contact Dr. Green by calling 305-243-3262.

Victor Haughton, MD
University of Wisconsin
Madison, Wisconsin

Haughton.jpg Victor Haughton is Professor of Radiology at the University of Wisconsin. He graduated from Harvard College in 1961 and Yale University School of Medicine in 1968. He has, during his academic career, written scientific reports and chapters on imaging the spine. He has studied arachnoiditis, spine anatomy and spine imaging with NIH support. Recently he has applied dynamic imaging and quantitative MR to the study of disk degeneration. With Medical Physics, he has initiated studies in the measurement of CSF flow in patients with Chiari I malformation. His present interests include MR Spectroscopy and functional MR imaging of the brain.

Contact Dr. Haughton .


Iskandar.jpg At Duke University, where he obtained his residency training, Dr. Iskandar developed a special interest in pediatric neurosurgery as well as studying regeneration of the central nervous system. Currently, Dr. Iskandar's research focuses on the relationship between the folate pathway, folic acid, and repair of the brain and spinal cord after injury. His clinical research focuses on foramen magnum flow analyses in Chiari I and syringomyelia. Dr. Iskandar conducts the Pediatric Neurosurgery Clinic at the University of Wisconsin Hospital and Clinics.

Contact Dr. Iskandar .

Dominic J. Marino, DVM, DACVS
Long Island Veterinary Specialists
Plainview, New York

Marino.jpg Dr. Dominic J. Marino is the Chairman of the Department of Surgery and Chief of Staff of Long Island Veterinary Specialists, an internationally recognized veterinary specialty center with a staff of over 180. . Marino was honored with both the Martin and Beatrice Weiser Outstanding Research Award and the North Shore Animal League Petering Scholarship Award during his residency. He is board certified by the American College of Veterinary Surgeons and is the former head of Orthopedic/Neurosurgery service at the Animal Medical Center in New York City.

Dr. Marino has published many scientific articles, and authored chapters in veterinary medical textbooks. He lectures extensively on many surgical topics including soft tissue, orthopedic and neurosurgery. Dr. Marino served as chairman of the Eastern Veterinary Orthopedic Society for several years and is on the National Advisory Board of North Shore Animal League America. He serves as the surgical consultant to: The Humane Society of New York, NY; Nassau University Medical Center, Uniondale, NY; North Shore Animal League America, Port Washington, NY; Bide-A-Wee Animal Adoption Center, Wantagh, NY; The Guide Dog Foundation, Smithtown, NY; Sweet Briar Nature Preserve, Smithtown, NY; and is an active executive board member of the Police Surgeons Benevolent Association, NY.

Contact Dr. Marino by calling 516-501-1700.

Arnold Menezes, MD
University of Iowa College of Medicine
Iowa City, Iowa

Menezes.jpg Dr. Arnold Menezes is Professor and Vice Chairman of the Department of Neurosurgery at the University of Iowa College of Medicine in Iowa City, Iowa. He has played a significant role in the development of the department and its teaching activities. His main areas of interest have been pediatric and spinal neurosurgery as well as the posterior skull base. He has been active in furthering these sections of the American Association of Neurological Surgeons as well as the Congress of Neurological Surgeons, and is a founding member of the North American Skull Base Society.

He has authored over 175 peer-reviewed publications, 102 book chapters and serves on seven editorial boards. His major textbooks include the first textbook on Craniovertebral Junction Abnormalities and Principles of Spinal Surgery, in addition to numerous monographs including "Spinal Neurosurgical Issues in the Pediatric Patient" and "The Craniovertebral Junction". He has made over 850 scientific presentations, including 56 visiting professorships throughout the United States and abroad. He was instrumental in setting up spinal neurosurgery programs and fostering specialty education in Asia, Africa, Europe and South America.

Dr. Menezes was the honored guest of the Congress of Neurological Surgeons in 2004. He is the president elect of the Neurosurgical Society of America (President 2008-2009).

Contact Dr. Menezes by calling 800-777-8442.

MisAo Nishikawa, Md phd
osaka city general hospital
osaka, japan

Nishikawa.jpg Dr. Misao Nishikawa graduated from Osaka City University Medical School in 1987, with dual degrees: Doctorate of Medical Science and Physiopathology (D.M.Sc. and Ph.D.) His major field of research and interest centered on Chiari malformation and syringomyelia. . Nishikawa then went on for additional training, serving as a Scholar for Developmental Biotechnology and Molecular Biology, at the Institute of Neuroscience, University of Oregon (focusing in developmental biology: neural crest cell segregation and migration). He has been a member of the Japanese Society of Spinal Surgery and Neurosurgery since 1989, and a Teaching and Board member of the Japanese Society of Spinal Surgery since July 2004 and the Japanese Society for Pediatric Neurosurgery since 1993.

Dr. Nishikawa is categorized as an outstanding researcher and surgeon at the Japanese Society of Spinal Surgery and Pediatric Neurosurgery. For example, his research into the morphometry and embryology of the posterior cranial fossa, craniovertebral junction and spine resulted in the discovering of the pathogenesis of Chiari.

Dr. Nishikawa joined The Chiari Institute as Research Director of Neurosurgery in 2007. He has been studying about Chiari malformation and its related disorders with . Thomas H. Milhorat and . Paolo A. Bolognese, and created new diagnostic assessments in concordance with the unique pathophysiology of these disorders. He has authored many chapters and articles about Chiari malformation, syringomyelia and cranio-vertebral junction diseases.

He is currently practicing at Osaka City General Hospital in Osaka, Japan.

Contact Dr. Nishikawa .


Oro.jpg Dr. John J. Oró is Director of the Neurosurgery Center of Colorado, Director of The Chiari Care Center, and Medical Director of Neurosurgery at The Medical Center of Aurora. He received his MD from the University of Texas Medical Branch at Galveston and neurosurgical training at The University of Missouri Health Sciences Center in Columbia, Missouri and became Board Certified by The American Board of Neurological Surgeons.

Prior to moving to Aurora, Colorado in 2005, Dr. Oró served as Professor and Chief of the Division of Neurological Surgery and Director of the Neurological Surgery Training Program at the University of Missouri-Columbia. He has special interest in the treatment of Chiari I Malformation and syringomyelia and also in the treatment of tumors of the brain, spine, and spinal cord, and treatment of degenerative and traumatic disorders of the spine. He was most recently listed among the Best Doctor's in America, America's Top Physicians, and America's Top Surgeons. He has since retired.

Contact Dr. Oró .

Shane Tubbs, MD

Tubbs.jpg Dr. R. Shane Tubbs serves as Chief Scientific Officer for the Seattle Science Foundation.  He is an anatomist and editor-in-chief for theJournal of Clinical Anatomy. For two decades, he has taught anatomy to medical, dental and health related students as well as residents and in particular, neurosurgery residents. Dr. Tubbs has strong research interests and has authored over 1,000 peer reviewed publications including multiple books such as Nerves and Nerve Injuries, Gray’s Clinical Photographic Dissector of the Human Body, Gray’s Anatomy Review, A History of Human Anatomy, Hamilton’s History of Medicine and Surgery, and The Chiari Malformations. He is the 6th most published author in the history of the Journal of Neurosurgery and is also an editor for Netter’s Atlas of Human Anatomy editions 5, 6, and 7. Dr. Tubbs is a new editor for the prestigious and now 150-year-old Gray’s Anatomy. The focus of his anatomical research is in the field of neurosurgery and how cadaveric studies can lower surgical complications and improve patient care. He has served as visiting professor to several institutions and sits on the editorial boards of over 10 clinical and anatomical journals and has acted as a reviewer for greater than 100 journals.

Contact Dr. Tubbs .

Revised 06/2016

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