Dorothy Poppe
Executive Director

Poppe.jpg Dorothy lives in Staten Island, New York and has three children – John is an attorney at Legal Aid Society, Mary works for Horizon Media, and George is a Research Fellow for the CUNY system and a physics PhD candidate in the Graduate Program. George was diagnosed with a Chiari malformation and syringomyelia in 1991 and had two surgeries in 1992. Her family also includes three furry friends, her dogs, Petey, Eddie and Buddy. For the past 28 years, Dorothy has enjoyed teaching ballet and point classes for St. Clare Dance Program on Saturday mornings. As a member of the Executive Women’s Council, she is active with the Staten Island Economic Development Corporation (SIEDC).
Dorothy received a Bachelor’s Degree from New York University Gallatin Division after being selected for the performance dance program at the Juilliard School in New York City. She has over 20 years of experience in the non-profit arena.
"Our key to success is that the Chiari & Syringomyelia Foundation has assembled a team of professionals that work together. We have established 38 regional chapters that educate and support thousands of patients and their families, making these lectures and materials available to all through our website. In addition, CSF has become known for our research symposiums and colloquiums that bring scientists, physicians, engineers, veterinarians and lay professionals together to ask questions and solve the problems in an effort to find a cure for CM, SM and related disorders. CSF has established a research endowment and has already funded research grants and fellows. In a few short years, we have grown from a small start-up charity to a national powerhouse for education, research and advocacy which patients, scientists and medical professional can rely on. I am proud to be part of an organization that attracts the caliber of professional colleagues who have joined CSF and believe in our mission."

Contact Dorothy Poppe .

Andrea Grosz
Marketing and Development Director

0279-IMG_4764.jpg Andrea lives in Forest Hills, New York with her husband, Ken and fifteen year old daughter, Lauren.

Andrea received a Bachelor’s Degree in Marketing from Hofstra University and started her career in a regional yellow pages publishing company where she was Marketing Coordinator. She later moved on to become Assistant Vice President of Marketing at North Fork Bank, headquartered in Long Island, New York. Before joining CSF, Andrea was Development and Support Administrator for the American Syringomyelia Alliance Project for four years, playing an integral role in the planning and execution of the organization’s fundraising initiatives.

Although she is not personally affected by SM or CM, Andrea is committed to CSF’s mission, to making a difference in the lives of those touched by these disorders and to the dream of someday finding a cure.

Contact Andrea Grosz .

Cathy Poznik
National Chapter Coordinator

Poznik.jpeg Cathy lives in Twinsburg, Ohio with her husband Jim and three boys, Calvin, Brent & Travis. Calvin has Chiari malformation, syringomyelia, and high intra-cranial pressure and Brent has Chiari malformation, dysautonomia, mast cell and EDS.

Beginning in 2002, Cathy was a volunteer with the American Syringomyelia Alliance Project and then a board member.  She was named ASAP’s volunteer of the year in 2005 for the work she’s done in raising funds at various events she set up.
Cathy was an original board member on the Chiari & Syringomyelia Foundation’s Board of Directors when CSF was founded in 2007.  She continued raising funds and awareness through events and became an employee of CSF in early 2011.

Cathy’s past experience includes working for over 10 years in the pension administration field and was the Manager at a Pension Firm. She took some time off to be a stay at home mom, but continued her volunteer work through PTO, Twinsburg AC Travel Soccer, Welcome Wagon Club of Solon, ASAP and CSF.

Her work with CSF includes overseeing the unite@night walks, helping set up Chapters, advocacy work with the unite@thehill program, and works very closely with people on social media to continue to develop these programs and events. Cathy also travels to educational lectures and walk sites to meet many of the people she works with.

Cathy is currently a Board Member on the Twinsburg Chamber of Commerce and is Chairperson for the Twinsburg Woman In Networking group. Cathy is also a member of the Twinsburgs CERT (Citizens Emergency Response Team).
Cathy’s goal in working with CSF is to continue her work in Community Awareness programs, raise much needed funds for research and programs that educate about these disorders, and work with a medical research board and Board of Directors that has committed itself to the cause.

Contact Cathy Poznik .

Kaitlyn Esposito
RESEARCH AND Program Assistant

Screen_Shot_2016-03-21_at_11.27.02_AM.png Kaitlyn Esposito received her Bachelor of Science in Biology from Seton Hall University in South Orange, New Jersey in May 2012. She is currently earning her Masters degree in public health from SUNY Downstate Medical Center in Brooklyn.
Kaitlyn had been an eager volunteer for the Chiari & Syringomyelia Foundation since its inception in 2007, electing to take an active role in several of the foundation’s events over the years. During her years with CSF, Kaitlyn has worked on numerous published scientific publications and has organized several medical research meetings and symposia. Her social media and grant-writing abilities have helped CSF more than double in membership and steadily grow in fundraising dollars over three short years. She has helped organize major events on Capitol Hill to advocate for biomedical research and neurological study over the past two years.
In addition to these accomplishments, Kaitlyn has been an integral part of an international effort to create a large-scale patient-centered database that will help clinicians and scientists learn more about disorders like Chiari and syringomyelia so that patients who are suffering from chronic pain that is unresponsive to narcotics will have better treatment options. In addition to her work with CSF, Kaitlyn is actively engaged in her local Staten Island community, teaching dance at St. Clare Parish and on the Board of Directors of All Island Kiwanis. Kaitlyn currently lives in Staten Island and continues to volunteer her time and services between work, school and family.

Contact Kaitlyn Esposito .


DAstolfo.jpeg Leah D’Astolfo, Chapter Assistant, started with CSF as a volunteer in the fall of her freshman year in high school.  Leah earned over 130 volunteer service hours with CSF during her high school years. She performed many different types of volunteer jobs including packing boxes, folding t-shirts for walks, stuffing invitation envelopes for events, registration at events and helping to oversee other volunteers to get these jobs completed.

Leah was such a hard worker, CSF offered her a position in  February 2015. She works diligently behind the scenes to ensure that the details are in order for each unite@night walk.

Leah is a recent graduate from Twinsburg High School and will continue her education at Ohio State University, where she will continue to work part-time for CSF.
Contact Leah D'Astolfo .

Revised 5/2016

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