Patient Information

street_sign.jpg CSF is committed to providing current and accurate medical information to educate patients and their families. The CM/SM ( Chiari Malformation/ Syringomyelia) Handbook is an excellent resource for patients and medical professionals. All educational material on the website is written by medical professionals and reviewed by our Scientific Education & Advisory Board Executive Committee before publication. The material is designed to help individuals understand the disorders and treatments in order to make knowledgeable decisions in their care. The information provided is designed to complement, not replace, the relationship between a patient and his/her own physician.

If you have further questions, or you happen to think of some while doing your research, please feel free to contact us at any time!


Comprehensive resource written by trail-blazing physicians in the field of Chiari malformation and syringomyelia. For adults, children and their families who have been diagnosed.

Learn more about CM : symptoms, methods of diagnosis, and treatment options . *Includes one page fact sheet to download and print*

Chiari malformation is much more common than once thought-- and not everyone requires treatment. Learn more about what asymptomatic or "incidental" Chiari is.

Learn more about SM: symptoms, methods of diagnosis, and treatment options. *Includes one page fact sheet to download and print*

Learn more about Ehlers-Danlos syndrome (EDS): symptoms, methods of diagnosis and treatment options. *Includes one page fact sheet to download and print*

Excellent resources for parents of a child with Chiari, syringomyelia or a related disorder and who're not sure where to begin.

Patients/parents and doctors often have to decide whether surgery is a good option for them. Learn more here, find a list of items to bring to the hospital for surgery, and what to expect after surgery.

Struggling with chronic pain? This is a list of everyday items that can potentially help ease pain. Have a handy item you'd like to add? Tell us about it!

You have rights. And you should know them.

Looking for a physician? Our medical advisory board is made up of the leading experts in the fields of Chiari, syringomyelia, and related disorders. But you can use this tool to help find a physician near you.

*Disclaimer: The physicians listed on the tool (link to left) may or may not specialize in CM/SM/a related disorder. You should always try finding a doctor you trust!

CSF Brochure

Ed: 4/2015

Find more information about our organization and how we want to help bring an end to Chiari malformation, syringomyelia and related disorders. You can also contact us at .

Revised 8/2017

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