The CSF Think Tank meeting takes place every year and brings together the leading physicians, scientists and leaders in the Chiari, syringomyelia and related disorder community.
We're very excited for the upcoming 2016 meeting in Chicago, Illinois on Saturday, April 30th! If you are a provider or researcher and are interested in attending, please contact Dorothy Poppe by phone (718-966-2593) or email .
The past two years have included collaborations between over 50 medical professionals and institutions around the globe. This collaboration on a national and international scale allowed the team to begin the process towards the first ever international Chiari database that will include standardized methods to streamline research. A patient database of this size and quality will allow for larger, multi-center, and more statistically sound research studies. With the more advanced, accurate research that this database can provide, we will be closer than ever to finding real solutions for patients and their families who struggle with these disorders every single day.
2017 CSF Think Tank (focus on "definition[s]" of Chiari)
2016 CSF Think Tank (focus on experimental research )
2015 CSF Think Tank (focus on pseudotumor cerebri )
Learn more about the CSF Database & Common Data Elements (CDEs) project here .